Chiarra Shapiro’s beautiful little girl was born with a rare condition known as Bilateral Microtia and Atresia; their medical aid doesn’t cover the surgery needed to help.
South Africa – Chiarra Shapiro is doing everything in her power to get her daughter the medical care she needs to thrive. Taelynn was born on the 11 March 2019, with a rare condition known as Bilateral Microtia and Atresia, meaning her inner and outer ears have not developed properly.
While the family have medical aid, the tier they are on means that Taelynn is not covered for any hearing aids or resulting surgeries. Chiarra has started a crowdfund in the hopes to raise the money needed for Taelynn’s first surgery in 2021. While that may seem like a long way off, the amount they need to raise is quite substantial and only covers the hearing aids and Cochlear Implants for the time being.
“I want Taelynn to grow up living a normal life, being able to do and learn everything that every other child can, without feeling different from everyone else.”
After her implants surgery, Taelynn will undergo another surgery which will be Reconstructive Ear Surgery. They will take cartilage from her rib cage to design ears for her.
The breakdown of the funding is as follows:
- BAHA Hearing Device(s) – R138 000 (R69 000 per ear)
- Cochlear Implants – R270 000 (R135 000 per ear)
“This will impact Taelynn’s life immensely, as she will be able to hear, speak and learn no differently to any other child. I would love Taelynn to lead as much of a normal life as possible, knowing she is very unique and will not be bullied in any way whatsoever.”
They are hopeful that the crowdfund will help them guarantee a better life for their daughter. If you would like to contribute, you can do so here.