Matty is only five. He lives with one of the rarest genetic disorders. At the time of his diagnosis, only 400 cases had been documented worldwide. His loving parents are…
A rare diagnosis changed everything for Jada, but it did not take away her joy, her strength or the hope that is now guiding her family through a life-changing journey…
Leanne Lorrance-Brown has helped care for Birdie since she arrived at HOLAH; Birdie’s rare disease is almost one of a kind and Leanne hopes to share her story at an…
Where mind meets heart
“There are those who give with joy, and that joy is their reward.” - Khalil Gibran
